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National Organization for Rare Disorders (NORD), Inc

(800) 999-6673

International clearinghouse for information on rare "orphan" diseases (affects fewer than 200,000 people in the U.S.). Provides information about orphan diseases as well as referrals to additional sources of information, assistance, and services to affected individuals, family members, medical professionals, researchers, educators, social workers, medical libraries, corporations, and the general public.

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